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The relationship between quality of life and coping strategies of children with EB and their parents
BACKGROUND: Epidermolysis bullosa (EB) is a group of rare genetic skin disorders that primarily manifest as blisters and erosions following mild mechanical trauma. Despite the crucial role of the parents of children with EB in managing the disease, studies focusing on the parent–child relationship r...
Gespeichert in:
| Veröffentlicht in: | Orphanet J Rare Dis |
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| Hauptverfasser: | , , , |
| Format: | Artigo |
| Sprache: | Inglês |
| Veröffentlicht: |
BioMed Central
2021
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| Schlagworte: | |
| Online Zugang: | https://ncbi.nlm.nih.gov/pmc/articles/PMC7847038/ https://ncbi.nlm.nih.gov/pubmed/33516244 https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s13023-021-01702-x |
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