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Stakeholder perspectives on clinical research related to therapies for rare diseases: therapeutic misconception and the value of research
BACKGROUND: For many rare diseases, few treatments are supported by strong evidence. Patients, family members, health care providers, and policy-makers thus have to consider whether to accept, recommend, or fund treatments with uncertain clinical effectiveness. They must also consider whether and ho...
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| Publicat a: | Orphanet J Rare Dis |
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| Autors principals: | , , , , , |
| Format: | Artigo |
| Idioma: | Inglês |
| Publicat: |
BioMed Central
2021
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| Matèries: | |
| Accés en línia: | https://ncbi.nlm.nih.gov/pmc/articles/PMC7805116/ https://ncbi.nlm.nih.gov/pubmed/33436030 https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s13023-020-01624-0 |
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