Research priorities in α(1)-antitrypsin deficiency: results of a patients' and healthcare providers' international survey from the EARCO Clinical Research Collaboration

α(1)-antitrypsin deficiency (AATD) is a rare and under-recognised genetic condition. Owing to its low prevalence, international initiatives are key for conducting high-quality research in the field. From July 2018 to December 2019, the European Alpha-1 Research Collaboration (EARCO) developed and co...

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Detalhes bibliográficos
Publicado no:ERJ Open Res
Main Authors: Barrecheguren, Miriam, O'Hara, Karen, Wilkens, Marion, Boyd, Jeanette, Kolda, Ewa, Lara, Beatriz, Chorostowska-Wynimko, Joanna, Ferrarotti, Ilaria, Chlumský, Jan, Clarenbach, Christian, Greulich, Timm, Miravitlles, Marc, Sucena, Maria
Formato: Artigo
Idioma:Inglês
Publicado em: European Respiratory Society 2020
Assuntos:
Original Articles
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC7792815/
https://ncbi.nlm.nih.gov/pubmed/33447613
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1183/23120541.00523-2020
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