Reporting Genetic Findings to Individual Research Participants: Guidelines From the Swiss Personalized Health Network

In 2017 the Swiss federal government established the Swiss Personalized Health Network (SPHN), a nationally coordinated data infrastructure for genetic research. The SPHN advisory group on Ethical, Legal, and Social Implications (ELSI) was tasked with the creation of a recommendation to ensure ethic...

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Bibliografiske detaljer
Udgivet i:Front Genet
Main Authors: Blasimme, Alessandro, Brall, Caroline, Vayena, Effy
Format: Artigo
Sprog:Inglês
Udgivet: Frontiers Media S.A. 2020
Fag:
Genetics
Online adgang:https://ncbi.nlm.nih.gov/pmc/articles/PMC7759560/
https://ncbi.nlm.nih.gov/pubmed/33362850
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.3389/fgene.2020.585820
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