Use of broad consent and related procedures in genomics research: Perspectives from research participants in the Genetics of Rheumatic Heart Disease (RHDGen) study in a University Teaching Hospital in Zambia

The use of broad consent for genomics research raises important ethical questions for the conduct of genomics research, including relating to its acceptability to research participants and comprehension of difficult scientific concepts. To explore these and other challenges, we conducted a study usi...

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Bibliographische Detailangaben
Veröffentlicht in:Glob Bioeth
Hauptverfasser: Mweemba, Oliver, Musuku, John, Mayosi, Bongani M., Parker, Michael, Rutakumwa, Rwamahe, Seeley, Janet, Tindana, Paulina, De Vries, Jantina
Format: Artigo
Sprache:Inglês
Veröffentlicht: Routledge 2019
Schlagworte:
Consent in genomics research in sub-Saharan Africa
Online Zugang:https://ncbi.nlm.nih.gov/pmc/articles/PMC7734073/
https://ncbi.nlm.nih.gov/pubmed/33343192
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1080/11287462.2019.1592868
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