Informed consent in genomic research and biobanking: taking feedback of findings seriously

Genomic research and biobanking present several ethical, social and cultural challenges, particularly when conducted in settings with limited scientific research capacity. One of these challenges is determining the model of consent that should support the sharing of human biological samples and data...

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Vydáno v:Glob Bioeth
Hlavní autoři: Tindana, Paulina, Depuur, Cornelius, de Vries, Jantina, Seeley, Janet, Parker, Michael
Médium: Artigo
Jazyk:Inglês
Vydáno: Routledge 2020
Témata:
Consent in genomics research in sub-Saharan Africa
On-line přístup:https://ncbi.nlm.nih.gov/pmc/articles/PMC7734033/
https://ncbi.nlm.nih.gov/pubmed/33343193
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1080/11287462.2020.1717896
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