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Health-related quality of life in Marfan syndrome: a 10-year follow-up

BACKGROUND: Marfan syndrome, a rare hereditary connective tissue disorder caused by mutations in fibrillin-1, can affect many organ systems, especially the cardiovascular system. Previous research has paid less attention to health-related quality of life and prospective studies on this topic are nee...

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Detalhes bibliográficos
Publicado no:Health Qual Life Outcomes
Main Authors: Vanem, Thy Thy, Rand-Hendriksen, Svend, Brunborg, Cathrine, Geiran, Odd Ragnar, Røe, Cecilie
Formato: Artigo
Idioma:Inglês
Publicado em: BioMed Central 2020
Assuntos:
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC7706277/
https://ncbi.nlm.nih.gov/pubmed/33256748
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s12955-020-01633-4
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