تحميل...
Improvements needed to support people living and working with a rare disease in Northern Ireland: current rare disease support perceived as inadequate
BACKGROUND: Many people living and working with rare diseases describe consistent difficulties accessing appropriate information and support. In this study an evaluation of the awareness of rare diseases, alongside related information and educational resources available for patients, their families...
محفوظ في:
| الحاوية / القاعدة: | Orphanet J Rare Dis |
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| المؤلفون الرئيسيون: | , , , , , , , |
| التنسيق: | Artigo |
| اللغة: | Inglês |
| منشور في: |
BioMed Central
2020
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| الموضوعات: | |
| الوصول للمادة أونلاين: | https://ncbi.nlm.nih.gov/pmc/articles/PMC7649905/ https://ncbi.nlm.nih.gov/pubmed/33168042 https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s13023-020-01559-6 |
| الوسوم: |
إضافة وسم
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