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Communicating cystic fibrosis newborn screening results to parents
The way results of cystic fibrosis (CF) newborn screening are communicated to parents is critical yet is done differently across the globe. We surveyed parents of 101 children in our tertiary London paediatric centre with a 48% response rate. Parental responses were as follows: 40/42 (95%) said the...
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| Publicado no: | Eur J Pediatr |
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| Main Authors: | , , , |
| Formato: | Artigo |
| Idioma: | Inglês |
| Publicado em: |
Springer Berlin Heidelberg
2020
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| Assuntos: | |
| Acesso em linha: | https://ncbi.nlm.nih.gov/pmc/articles/PMC7567649/ https://ncbi.nlm.nih.gov/pubmed/33067713 https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1007/s00431-020-03829-8 |
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