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Patient reported outcome measures in a large cohort of patients with type 1 Gaucher disease
BACKGROUND: It is now acknowledged that the input of patients in health outcome assessment is vital to understanding the impact of diseases and interventions for those diseases. This study is the first report of patient-reported outcome measures (PROM) in a large cohort of patients with type 1 Gauch...
Uloženo v:
| Vydáno v: | Orphanet J Rare Dis |
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| Hlavní autoři: | , , , , , , |
| Médium: | Artigo |
| Jazyk: | Inglês |
| Vydáno: |
BioMed Central
2020
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| Témata: | |
| On-line přístup: | https://ncbi.nlm.nih.gov/pmc/articles/PMC7556970/ https://ncbi.nlm.nih.gov/pubmed/33050940 https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s13023-020-01544-z |
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