Fitness for purpose of routinely recorded health data to identify patients with complex diseases: The case of Sjögren's syndrome

BACKGROUND: This study is part of the EU‐funded project HarmonicSS, aimed at improving the treatment and diagnosis of primary Sjögren's syndrome (pSS). pSS is an underdiagnosed, long‐term autoimmune disease that affects particularly salivary and lachrymal glands. OBJECTIVES: We assessed the usa...

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Bibliographic Details
Published in:Learn Health Syst
Main Authors: Wiegersma, Sytske, Flinterman, Linda E., Seghieri, Chiara, Baldini, Chiara, Paget, John, Barrio Cortés, Jaime, Verheij, Robert A.
Format: Artigo
Language:Inglês
Published: John Wiley and Sons Inc. 2020
Subjects:
Research Reports
Online Access:https://ncbi.nlm.nih.gov/pmc/articles/PMC7556429/
https://ncbi.nlm.nih.gov/pubmed/33083541
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1002/lrh2.10242
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