‘A sword of Damocles’: patient and caregiver beliefs, attitudes and perspectives on presymptomatic testing for autosomal dominant polycystic kidney disease: a focus group study

BACKGROUND AND OBJECTIVES: Presymptomatic testing is available for early diagnosis of hereditary autosomal dominant polycystic kidney disease (ADPKD). However, the complex ethical and psychosocial implications can make decision-making challenging and require an understanding of patients’ values, goa...

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Bibliografiske detaljer
Udgivet i:BMJ Open
Main Authors: Logeman, Charlotte, Cho, Yeoungjee, Sautenet, Benedicte, Rangan, Gopala K, Gutman, Talia, Craig, Jonathan, Ong, Albert, Chapman, Arlene, Ahn, Curie, Coolican, Helen, Tze-Wah Kao, Juliana, Gansevoort, Ron T, Perrone, Ronald, Harris, Tess, Torres, Vincent, Fowler, Kevin, Pei, York, Kerr, Peter, Ryan, Jessica, Johnson, David, Viecelli, Andrea, Geneste, Clair, Kim, Hyunsuk, Kim, Yaerim, Howell, Martin, Ju, Angela, Manera, Karine E, Teixeira-Pinto, Armando, Parasivam, Gayathri, Tong, Allison
Format: Artigo
Sprog:Inglês
Udgivet: BMJ Publishing Group 2020
Fag:
Paediatrics
Online adgang:https://ncbi.nlm.nih.gov/pmc/articles/PMC7549480/
https://ncbi.nlm.nih.gov/pubmed/33040007
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1136/bmjopen-2020-038005
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