Trust in Centralized Large-Scale Data Repository: A Qualitative Analysis

Exponential increases in digital data and calls for participation in human research raise questions about when and why individuals voluntarily provide personal data. We conducted 36 in-depth interviews with ex-participants, participants, and nonparticipants in a biobank to identify key factors influ...

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Detaylı Bibliyografya
Yayımlandı:J Empir Res Hum Res Ethics
Asıl Yazarlar: Broekstra, Reinder, Aris-Meijer, Judith, Maeckelberghe, Els, Stolk, Ronald, Otten, Sabine
Materyal Türü: Artigo
Dil:Inglês
Baskı/Yayın Bilgisi: SAGE Publications 2019
Konular:
Empirical Studies on Big Data and Data Sharing
Online Erişim:https://ncbi.nlm.nih.gov/pmc/articles/PMC7488827/
https://ncbi.nlm.nih.gov/pubmed/31738093
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1177/1556264619888365
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