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Role of a regulatory and governance framework in human biological materials and data sharing in National Biobanks: Case studies from Biobank Integrating Platform, Taiwan and the National Biorepository, Uganda

Background: In the last decade, Low- and Middle-Income Countries (LMICs) have set up Biobanks to collect human biological materials and associated data for genomic research and public health purposes. Biobanking gives rise to ethical challenges, such as informed consent, benefit sharing, confidentia...

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Detalhes bibliográficos
Publicado no:Wellcome Open Res
Main Authors: Nansumba, Hellen, Ssewanyana, Isaac, Tai, Micheal, Wassenaar, Douglas
Formato: Artigo
Idioma:Inglês
Publicado em: F1000 Research Limited 2020
Assuntos:
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC7479498/
https://ncbi.nlm.nih.gov/pubmed/32954012
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.12688/wellcomeopenres.15442.2
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