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Evaluation of assessment of caregiver experience with neuromuscular disease: reliability and responsiveness of a new caregiver-reported outcome measure in patients with cerebral palsy

BACKGROUND: Cerebral palsy (CP) is the most common cause of chronic childhood disability. Caregivers often provide prolonged care over patients’ life span, thus measuring the impact of the disease and its treatments on caregivers has become a recent focus in research. The current study aims to prese...

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Detalhes bibliográficos
Publicado no:Transl Pediatr
Main Authors: Xu, Nanfang, Matsumoto, Hiroko, Hyman, Joshua, Roye, Benjamin, Kim, Heakyung, Roye, David P.
Formato: Artigo
Idioma:Inglês
Publicado em: AME Publishing Company 2020
Assuntos:
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC7475311/
https://ncbi.nlm.nih.gov/pubmed/32953548
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.21037/tp-19-176
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