A feasibility study of mHealth and wearable technology in late onset GM2 gangliosidosis (Tay-Sachs and Sandhoff Disease)

BACKGROUND: As part of a late onset GM2 gangliosidosis natural history study, digital health technology was utilized to monitor a group of patients remotely between hospital visits. This approach was explored as a means of capturing continuous data and moving away from focusing only on episodic data...

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Veröffentlicht in:Orphanet J Rare Dis
Hauptverfasser: Davies, Elin Haf, Johnston, Jean, Toro, Camilo, Tifft, Cynthia J.
Format: Artigo
Sprache:Inglês
Veröffentlicht: BioMed Central 2020
Schlagworte:
Research
Online Zugang:https://ncbi.nlm.nih.gov/pmc/articles/PMC7397597/
https://ncbi.nlm.nih.gov/pubmed/32746863
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s13023-020-01473-x
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