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Quality of Life of Patients with Wiskott Aldrich Syndrome and X-Linked Thrombocytopenia: a Study of the Primary Immune Deficiency Consortium (PIDTC), Immune Deficiency Foundation, and the Wiskott-Aldrich Foundation

BACKGROUND: We undertook a study to determine the impact of Wiskott Aldrich Syndrome (WAS) and X-linked thrombocytopenia (XLT) and their therapies upon the health-related quality of life (HRQOL) of patients and their families. MATERIALS AND METHODS: We undertook a survey of patients and their famili...

Πλήρης περιγραφή

Αποθηκεύτηκε σε:
Λεπτομέρειες βιβλιογραφικής εγγραφής
Τόπος έκδοσης:J Clin Immunol
Κύριοι συγγραφείς: Shah, Ami J., Sokolic, Robert, Logan, Brent, Yin, Ziyan, Iyengar, Sumathi, Scalchunes, Chris, Mangurian, Christina, Albert, Michael, Cowan, Morton J.
Μορφή: Artigo
Γλώσσα:Inglês
Έκδοση: 2019
Θέματα:
Διαθέσιμο Online:https://ncbi.nlm.nih.gov/pmc/articles/PMC7385986/
https://ncbi.nlm.nih.gov/pubmed/31620947
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1007/s10875-019-00689-2
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