Profiling trial burden and patients’ attitudes to improve clinical research in epidermolysis bullosa

BACKGROUND: Epidermolysis bullosa (EB) comprises inherited mechanobullous dermatoses with considerable morbidity and mortality. While current treatments are symptomatic, a growing number of innovative therapeutic compounds are evaluated in clinical trials. Clinical research in rare diseases like EB,...

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Enregistré dans:
Détails bibliographiques
Publié dans:Orphanet J Rare Dis
Auteurs principaux: Prodinger, Christine, Diem, Anja, Ude-Schoder, Katherina, Piñón-Hofbauer, Josefina, Kitzmueller, Sophie, Bauer, Johann W., Laimer, Martin
Format: Artigo
Langue:Inglês
Publié: BioMed Central 2020
Sujets:
Research
Accès en ligne:https://ncbi.nlm.nih.gov/pmc/articles/PMC7350741/
https://ncbi.nlm.nih.gov/pubmed/32650809
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s13023-020-01443-3
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