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Profiling trial burden and patients’ attitudes to improve clinical research in epidermolysis bullosa
BACKGROUND: Epidermolysis bullosa (EB) comprises inherited mechanobullous dermatoses with considerable morbidity and mortality. While current treatments are symptomatic, a growing number of innovative therapeutic compounds are evaluated in clinical trials. Clinical research in rare diseases like EB,...
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| Publicado no: | Orphanet J Rare Dis |
|---|---|
| Main Authors: | , , , , , , |
| Formato: | Artigo |
| Idioma: | Inglês |
| Publicado em: |
BioMed Central
2020
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| Assuntos: | |
| Acesso em linha: | https://ncbi.nlm.nih.gov/pmc/articles/PMC7350741/ https://ncbi.nlm.nih.gov/pubmed/32650809 https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s13023-020-01443-3 |
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