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Establishing Patient Registries for Rare Diseases: Rationale and Challenges
Globally, an estimated 350 million people are affected by a rare disease diagnosis. Knowledge limitations persist for the majority of rare conditions due to systemic and structural challenges in healthcare and research. Disease-specific patient populations are often small and geographically disperse...
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| Publicado no: | Pharmaceut Med |
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| Main Authors: | , , , , |
| Formato: | Artigo |
| Idioma: | Inglês |
| Publicado em: |
Springer International Publishing
2020
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| Assuntos: | |
| Acesso em linha: | https://ncbi.nlm.nih.gov/pmc/articles/PMC7286934/ https://ncbi.nlm.nih.gov/pubmed/32215853 https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1007/s40290-020-00332-1 |
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