Toward a Risk-Utility Data Governance Framework for Research Using Genomic and Phenotypic Data in Safe Havens: Multifaceted Review

BACKGROUND: Research using genomic data opens up new insights into health and disease. Being able to use the data in association with health and administrative record data held in safe havens can multiply the benefits. However, there is much discussion about the use of genomic data with perceptions...

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Veröffentlicht in:J Med Internet Res
Hauptverfasser: Jones, Kerina, Daniels, Helen, Heys, Sharon, Lacey, Arron, Ford, David V
Format: Artigo
Sprache:Inglês
Veröffentlicht: JMIR Publications 2020
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Original Paper
Online Zugang:https://ncbi.nlm.nih.gov/pmc/articles/PMC7260661/
https://ncbi.nlm.nih.gov/pubmed/32412420
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.2196/16346
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