Toward a Risk-Utility Data Governance Framework for Research Using Genomic and Phenotypic Data in Safe Havens: Multifaceted Review

BACKGROUND: Research using genomic data opens up new insights into health and disease. Being able to use the data in association with health and administrative record data held in safe havens can multiply the benefits. However, there is much discussion about the use of genomic data with perceptions...

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Vydáno v:J Med Internet Res
Hlavní autoři: Jones, Kerina, Daniels, Helen, Heys, Sharon, Lacey, Arron, Ford, David V
Médium: Artigo
Jazyk:Inglês
Vydáno: JMIR Publications 2020
Témata:
Original Paper
On-line přístup:https://ncbi.nlm.nih.gov/pmc/articles/PMC7260661/
https://ncbi.nlm.nih.gov/pubmed/32412420
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.2196/16346
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