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Exploring broad consent in the context of the 100,000 Genomes Project: a mixed methods study

The 100,000 Genomes Project (100kGP)—a hybrid clinical-research initiative—was set up to analyse whole-genome sequences (WGS) from patients living with a rare disease or cancer. The project positioned participant consent as being of central importance, but consent in the context of genomic testing r...

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Detalhes bibliográficos
Publicado no:Eur J Hum Genet
Main Authors: Ballard, Lisa M., Horton, Rachel H., Dheensa, Sandi, Fenwick, Angela, Lucassen, Anneke M.
Formato: Artigo
Idioma:Inglês
Publicado em: Springer International Publishing 2020
Assuntos:
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC7253456/
https://ncbi.nlm.nih.gov/pubmed/31919452
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1038/s41431-019-0570-7
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