Innovative Recruitment Strategies to Increase Diversity of Participation in Parkinson’s Disease Research: The Fox Insight Cohort Experience

BACKGROUND: Clinical research in Parkinson’s disease (PD) faces practical and ethical challenges due to two interrelated problems: participant under-recruitment and lack of diversity. Fox Insight (FI) is a web-based longitudinal study collecting patient-reported outcomes and genetic data worldwide t...

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Tallennettuna:
Bibliografiset tiedot
Julkaisussa:J Parkinsons Dis
Päätekijät: Dobkin, Roseanne D., Amondikar, Ninad, Kopil, Catherine, Caspell-Garcia, Chelsea, Brown, Ethan, Chahine, Lana M., Marras, Connie, Dahodwala, Nabila, Mantri, Sneha, Standaert, David G., Dean, Marissa, Shoulson, Ira, Marek, Kenneth, Katz, Andrea, Korell, Monica, Riley, Lindsey, Tanner, Caroline M.
Aineistotyyppi: Artigo
Kieli:Inglês
Julkaistu: IOS Press 2020
Aiheet:
Research Report
Linkit:https://ncbi.nlm.nih.gov/pmc/articles/PMC7242847/
https://ncbi.nlm.nih.gov/pubmed/32250321
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.3233/JPD-191901
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