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Developing model biobanking consent language: what matters to prospective participants?

BACKGROUND: Efforts to improve informed consent have led to calls for providing information a reasonable person would want to have, in a way that facilitates understanding of the reasons why one might or might not want to participate. At the same time, advances in large-scale genomic research have e...

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Pubblicato in:BMC Med Res Methodol
Autori principali: Beskow, Laura M., Hammack-Aviran, Catherine M., Brelsford, Kathleen M.
Natura: Artigo
Lingua:Inglês
Pubblicazione: BioMed Central 2020
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Accesso online:https://ncbi.nlm.nih.gov/pmc/articles/PMC7227271/
https://ncbi.nlm.nih.gov/pubmed/32414333
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s12874-020-01001-2
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