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Children and adolescents with VACTERL association: health-related quality of life and psychological well-being in children and adolescents and their parents
PURPOSE: VACTERL association is a rare and complex condition of congenital malformations, often requiring repeated surgery and entailing various physical sequelae. Due to scarcity of knowledge, the study aim was to investigate self-reported health-related quality of life (HRQoL), anxiety, depression...
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| 出版年: | Qual Life Res |
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| 主要な著者: | , , , , |
| フォーマット: | Artigo |
| 言語: | Inglês |
| 出版事項: |
Springer International Publishing
2019
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| 主題: | |
| オンライン･アクセス: | https://ncbi.nlm.nih.gov/pmc/articles/PMC7142056/ https://ncbi.nlm.nih.gov/pubmed/31741214 https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1007/s11136-019-02364-w |
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