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Children and adolescents with VACTERL association: health-related quality of life and psychological well-being in children and adolescents and their parents

PURPOSE: VACTERL association is a rare and complex condition of congenital malformations, often requiring repeated surgery and entailing various physical sequelae. Due to scarcity of knowledge, the study aim was to investigate self-reported health-related quality of life (HRQoL), anxiety, depression...

詳細記述

保存先:
書誌詳細
出版年:Qual Life Res
主要な著者: Kassa, A-M., Dellenmark-Blom, M., Thorsell Cederberg, J., Engvall, G., Engstrand Lilja, H.
フォーマット: Artigo
言語:Inglês
出版事項: Springer International Publishing 2019
主題:
オンライン・アクセス:https://ncbi.nlm.nih.gov/pmc/articles/PMC7142056/
https://ncbi.nlm.nih.gov/pubmed/31741214
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1007/s11136-019-02364-w
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