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Diagnosing Juvenile Huntington’s Disease: An Explorative Study among Caregivers of Affected Children

Objective: To investigate the reasons for the diagnostic delay of juvenile Huntington’s disease patients in the Netherlands. Methods: This study uses interpretative phenomenological analysis. Eligible participants were parents and caregivers of juvenile Huntington’s disease patients. Results: Eight...

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Shranjeno v:
Bibliografske podrobnosti
izdano v:Brain Sci
Main Authors: Oosterloo, Mayke, Bijlsma, Emilia K., de Die-Smulders, Christine, Roos, Raymund A. C.
Format: Artigo
Jezik:Inglês
Izdano: MDPI 2020
Teme:
Online dostop:https://ncbi.nlm.nih.gov/pmc/articles/PMC7139393/
https://ncbi.nlm.nih.gov/pubmed/32156063
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.3390/brainsci10030155
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