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Stakeholders’ perspectives on the post-mortem use of genetic and health-related data for research: a systematic review

The majority of biobank policies and consent forms do not address post-mortem use of data for medical research, thus causing uncertainty after research participants’ death. This systematic review identifies studies examining stakeholders’ perspectives on this issue. We conducted a search in MEDLINE,...

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Dettagli Bibliografici
Pubblicato in:Eur J Hum Genet
Autori principali: Bak, Marieke A. R., Ploem, M. Corrette, Ateşyürek, Hakan, Blom, Marieke T., Tan, Hanno L., Willems, Dick L.
Natura: Artigo
Lingua:Inglês
Pubblicazione: Springer International Publishing 2019
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Accesso online:https://ncbi.nlm.nih.gov/pmc/articles/PMC7080773/
https://ncbi.nlm.nih.gov/pubmed/31527854
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1038/s41431-019-0503-5
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