Lived Experiences of Fragile X Syndrome Caregivers: A Scoping Review of Qualitative Studies

Fragile X Syndrome (FXS) is the most common x-linked monogenic cause of Intellectual Disability (ID) and Autism Spectrum Disorder (ASD). Taking care of children with ID is challenging and overwhelming due to the multiple facets of caregiving. This scoping review aimed at summarizing the qualitative...

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Bibliographic Details
Published in:Front Neurol
Main Authors: Kamga, Karen Kengne, De Vries, Jantina, Nguefack, Seraphin, Munung, Syntia Nchangwi, Wonkam, Ambroise
Format: Artigo
Language:Inglês
Published: Frontiers Media S.A. 2020
Subjects:
Neurology
Online Access:https://ncbi.nlm.nih.gov/pmc/articles/PMC7056838/
https://ncbi.nlm.nih.gov/pubmed/32174884
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.3389/fneur.2020.00128
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