Organization for rare diseases India (ORDI) – addressing the challenges and opportunities for the Indian rare diseases' community

In order to address the unmet needs and create opportunities that benefit patients with rare disease in India, a group of volunteers created a not-for-profit organization named Organization for Rare Diseases India (ORDI; www.ordindia.org). ORDI plans to represent the collective voice and advocate th...

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Bibliographic Details
Published in:Genet Res (Camb)
Main Authors: RAJASIMHA, HARSHA KARUR, SHIROL, PRASANNAKUMAR BASAYYA, RAMAMOORTHY, PREVEEN, HEGDE, MADHURI, BARDE, SANGEETA, CHANDRU, VIJAY, RAVINANDAN, M. E., RAMCHANDRAN, RAMANI, HALDAR, KASTURI, LIN, JIMMY C., BABAR, IMRAN A., GIRISHA, KATTA M., SRINIVASAN, SUDHA, NAVANEETHAM, DURAISWAMY, BATTU, RAJANI, DEVARAKONDA, RAJASHREE, KINI, USHA, VIJAYACHANDRA, KINNIMULKI, VERMA, ISHWAR C.
Format: Artigo
Language:Inglês
Published: Cambridge University Press 2014
Subjects:
Research Papers
Online Access:https://ncbi.nlm.nih.gov/pmc/articles/PMC7044965/
https://ncbi.nlm.nih.gov/pubmed/25579084
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1017/S0016672314000111
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