Standardised clinical data from patients with primary ciliary dyskinesia: FOLLOW-PCD

Clinical data on primary ciliary dyskinesia (PCD) are limited, heterogeneous and mostly derived from retrospective chart reviews, leading to missing data and unreliable symptoms and results of physical examinations. We need standardised prospective data collection to study phenotypes, severity and p...

ver descrição completa

Na minha lista:
Detalhes bibliográficos
Publicado no:ERJ Open Res
Main Authors: Goutaki, Myrofora, Papon, Jean-François, Boon, Mieke, Casaulta, Carmen, Eber, Ernst, Escudier, Estelle, Halbeisen, Florian S., Harris, Amanda, Hogg, Claire, Honore, Isabelle, Jung, Andreas, Karadag, Bulent, Koerner-Rettberg, Cordula, Legendre, Marie, Maitre, Bernard, Nielsen, Kim G., Rubbo, Bruna, Rumman, Nisreen, Schofield, Lynne, Shoemark, Amelia, Thouvenin, Guillaume, Willkins, Hannah, Lucas, Jane S., Kuehni, Claudia E.
Formato: Artigo
Idioma:Inglês
Publicado em: European Respiratory Society 2020
Assuntos:
Original Articles
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC7008138/
https://ncbi.nlm.nih.gov/pubmed/32055632
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1183/23120541.00237-2019
Tags: Adicionar Tag
Sem tags, seja o primeiro a adicionar uma tag!

Registos relacionados