Загрузка...

Disclosure to genetic relatives without consent – Australian genetic professionals’ awareness of the health privacy law

BACKGROUND: When a genetic mutation is identified in a family member (proband), internationally, it is usually the proband’s or another responsible family member’s role to disclose the information to at-risk relatives. However, both active and passive non-disclosure in families occurs: choosing not...

Полное описание

Сохранить в:
Библиографические подробности
Опубликовано в: :BMC Med Ethics
Главные авторы: Meggiolaro, Natalia, Barlow-Stewart, Kristine, Dunlop, Kate, Newson, Ainsley J., Fleming, Jane
Формат: Artigo
Язык:Inglês
Опубликовано: BioMed Central 2020
Предметы:
Online-ссылка:https://ncbi.nlm.nih.gov/pmc/articles/PMC7001268/
https://ncbi.nlm.nih.gov/pubmed/32019532
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s12910-020-0451-1
Метки: Добавить метку
Нет меток, Требуется 1-ая метка записи!