טוען...
The challenges of living with and managing epidermolysis bullosa: insights from patients and caregivers
BACKGROUND: Little information is available regarding the burden of living with and managing epidermolysis bullosa, including the distinct challenges faced by patients with different disease types/subtypes. METHODS: A 90-question/item survey was developed to collect demographics, diagnostic data, ma...
שמור ב:
| הוצא לאור ב: | Orphanet J Rare Dis |
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| Main Authors: | , , , , , , , , , , |
| פורמט: | Artigo |
| שפה: | Inglês |
| יצא לאור: |
BioMed Central
2020
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| נושאים: | |
| גישה מקוונת: | https://ncbi.nlm.nih.gov/pmc/articles/PMC6942340/ https://ncbi.nlm.nih.gov/pubmed/31900176 https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s13023-019-1279-y |
| תגים: |
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