The Paediatric Haemophilia Activities List (pedHAL) in routine assessment: changes over time, child‐parent agreement and informative domains

INTRODUCTION: The Paediatric Haemophilia Activities List (pedHAL) assesses self‐reported limitations in activities and participation in children with haemophilia. AIM: To assess longitudinal changes, child‐parent agreement and to identify which pedHAL domains yielded most information in boys with ac...

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Bibliografische gegevens
Gepubliceerd in:Haemophilia
Hoofdauteurs: Kuijlaars, Isolde A. R., van der Net, Janjaap, Schutgens, Roger E. G., Fischer, Kathelijn
Formaat: Artigo
Taal:Inglês
Gepubliceerd in: John Wiley and Sons Inc. 2019
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Original Articles
Online toegang:https://ncbi.nlm.nih.gov/pmc/articles/PMC6899608/
https://ncbi.nlm.nih.gov/pubmed/31418971
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1111/hae.13835
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