Effect of Public Deliberation on Patient Attitudes Regarding Consent and Data Use in a Learning Health Care System for Oncology

PURPOSE: We sought to generate informed and considered opinions regarding acceptable secondary uses of deidentified health information and consent models for oncology learning health care systems. METHODS: Day-long democratic deliberation sessions included 217 patients with cancer at four geographic...

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Detalles Bibliográficos
Publicado en:J Clin Oncol
Autores principales: Jagsi, Reshma, Griffith, Kent A., Jones, Rochelle D., Krenz, Chris, Gornick, Michele, Spence, Rebecca, De Vries, Raymond, Hawley, Sarah T., Zon, Robin, Bolte, Sage, Sadeghi, Navid, Schilsky, Richard L., Bradbury, Angela R.
Formato: Artigo
Lenguaje:Inglês
Publicado: American Society of Clinical Oncology 2019
Materias:
Original Reports
Acceso en línea:https://ncbi.nlm.nih.gov/pmc/articles/PMC6881101/
https://ncbi.nlm.nih.gov/pubmed/31577472
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1200/JCO.19.01693
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