Developing and pretesting a new patient reported outcome measure for paediatric Chronic Fatigue Syndrome/ Myalgic Encephalopathy (CFS/ME): cognitive interviews with children

BACKGROUND: There is a lack of patient derived, child specific outcome measures to capture what health outcomes are important to children with Chronic Fatigue Syndrome/ Myalgic Encephalopathy (CFS/ME). We developed a new Patient Reported Outcome Measure (PROM) for paediatric CFS/ME through qualitati...

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Veröffentlicht in:J Patient Rep Outcomes
Hauptverfasser: Parslow, Roxanne M., Shaw, Alison, Haywood, Kirstie L., Crawley, Esther
Format: Artigo
Sprache:Inglês
Veröffentlicht: Springer International Publishing 2019
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Research
Online Zugang:https://ncbi.nlm.nih.gov/pmc/articles/PMC6842364/
https://ncbi.nlm.nih.gov/pubmed/31707635
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s41687-019-0156-8
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