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Evaluation of Outcomes and Quality of Care in Children with Sickle Cell Disease Diagnosed by Newborn Screening: A Real-World Nation-Wide Study in France

This study’s objective was to assess, on a national scale, residual risks of death, major disease-related events, and quality of care during the first five years in children diagnosed at birth with sickle cell disease (SCD). Data were retrospectively collected from medical files of all children with...

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Detalhes bibliográficos
Publicado no:J Clin Med
Main Authors: Brousse, Valentine, Arnaud, Cécile, Lesprit, Emmanuelle, Quinet, Béatrice, Odièvre, Marie-Hélène, Etienne-Julan, Maryse, Guillaumat, Cécile, Elana, Gisèle, Belloy, Marie, Garnier, Nathalie, Chamouine, Abdourahim, Dumesnil, Cécile, De Montalembert, Mariane, Pondarre, Corinne, Bernaudin, Françoise, Couque, Nathalie, Boutin, Emmanuelle, Bardakjian, Josiane, Djennaoui, Fatiha, Ithier, Ghislaine, Benkerrou, Malika, Thuret, Isabelle
Formato: Artigo
Idioma:Inglês
Publicado em: MDPI 2019
Assuntos:
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC6832704/
https://ncbi.nlm.nih.gov/pubmed/31581727
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.3390/jcm8101594
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