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An observational study of pediatric healthcare burden in Angelman syndrome: results from a real-world study

BACKGROUND: The objective of this study is to describe variations in the healthcare resource utilization (HRU) among individuals with Angelman syndrome (AS) over the first 12 years of life. Data for this study were drawn from the AS Natural History study (ASNHS), which is an observational study on t...

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Detalhes bibliográficos
Publicado no:Orphanet J Rare Dis
Main Authors: Khan, Nasreen, Cabo, Raquel, Tan, Wen-Hann, Tayag, Regina, Bird, Lynne M.
Formato: Artigo
Idioma:Inglês
Publicado em: BioMed Central 2019
Assuntos:
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC6829925/
https://ncbi.nlm.nih.gov/pubmed/31684986
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s13023-019-1210-6
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