Establishing a Multi-Country Sickle Cell Disease Registry in Africa: Ethical Considerations

Sickle cell disease (SCD) is one of the most prevalent genetic conditions in sub-Saharan Africa. It is a chronic, lifelong disease often characterized by severe pain. However, SCD has received little investment terms of health research, though there is currently a growing pool of SCD data from healt...

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Zapisane w:
Opis bibliograficzny
Wydane w:Front Genet
Główni autorzy: Munung, Nchangwi Syntia, Nembaware, Victoria, de Vries, Jantina, Bukini, Daima, Tluway, Furahini, Treadwell, Marsha, Sangeda, Raphael Zozimus, Mazandu, Gaston, Jonas, Mario, Paintsil, Vivian, Nnodu, Obiageli E., Balandya, Emmanuel, Makani, Julie, Wonkam, Ambroise
Format: Artigo
Język:Inglês
Wydane: Frontiers Media S.A. 2019
Hasła przedmiotowe:
Genetics
Dostęp online:https://ncbi.nlm.nih.gov/pmc/articles/PMC6795756/
https://ncbi.nlm.nih.gov/pubmed/31649726
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.3389/fgene.2019.00943
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