Establishing a Multi-Country Sickle Cell Disease Registry in Africa: Ethical Considerations

Sickle cell disease (SCD) is one of the most prevalent genetic conditions in sub-Saharan Africa. It is a chronic, lifelong disease often characterized by severe pain. However, SCD has received little investment terms of health research, though there is currently a growing pool of SCD data from healt...

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Bibliografske podrobnosti
izdano v:Front Genet
Main Authors: Munung, Nchangwi Syntia, Nembaware, Victoria, de Vries, Jantina, Bukini, Daima, Tluway, Furahini, Treadwell, Marsha, Sangeda, Raphael Zozimus, Mazandu, Gaston, Jonas, Mario, Paintsil, Vivian, Nnodu, Obiageli E., Balandya, Emmanuel, Makani, Julie, Wonkam, Ambroise
Format: Artigo
Jezik:Inglês
Izdano: Frontiers Media S.A. 2019
Teme:
Genetics
Online dostop:https://ncbi.nlm.nih.gov/pmc/articles/PMC6795756/
https://ncbi.nlm.nih.gov/pubmed/31649726
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.3389/fgene.2019.00943
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