Establishing a Multi-Country Sickle Cell Disease Registry in Africa: Ethical Considerations

Sickle cell disease (SCD) is one of the most prevalent genetic conditions in sub-Saharan Africa. It is a chronic, lifelong disease often characterized by severe pain. However, SCD has received little investment terms of health research, though there is currently a growing pool of SCD data from healt...

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Détails bibliographiques
Publié dans:Front Genet
Auteurs principaux: Munung, Nchangwi Syntia, Nembaware, Victoria, de Vries, Jantina, Bukini, Daima, Tluway, Furahini, Treadwell, Marsha, Sangeda, Raphael Zozimus, Mazandu, Gaston, Jonas, Mario, Paintsil, Vivian, Nnodu, Obiageli E., Balandya, Emmanuel, Makani, Julie, Wonkam, Ambroise
Format: Artigo
Langue:Inglês
Publié: Frontiers Media S.A. 2019
Sujets:
Genetics
Accès en ligne:https://ncbi.nlm.nih.gov/pmc/articles/PMC6795756/
https://ncbi.nlm.nih.gov/pubmed/31649726
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.3389/fgene.2019.00943
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