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Experiences of children with trisomy 18 referred to pediatric palliative care services on two continents

Children with trisomy 18 that survive beyond the neonatal period have multiple congenital anomalies, neurodevelopmental disability, and high mortality rates. The experience of children with trisomy 18 who receive pediatric palliative care services is largely unknown. We conducted a retrospective rev...

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Detalhes bibliográficos
Publicado no:Am J Med Genet A
Main Authors: Mullin, Jonathan, Wolfe, Joanne, Bluebond‐Langner, Myra, Craig, Finella
Formato: Artigo
Idioma:Inglês
Publicado em: John Wiley & Sons, Inc. 2019
Assuntos:
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC6766889/
https://ncbi.nlm.nih.gov/pubmed/30932336
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1002/ajmg.a.61149
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