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Communication Needs for Individuals With Rare Diseases Within and Around the Healthcare System of Northern Ireland

Objective: By definition a rare disease affects fewer than 1 in 2,000 people but collectively 1 in 17 people are affected at some time in their lives. Rare disease patients often describe feeling isolated and unsupported. The needs of individuals living with rare disease(s) are not well met globally...

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Shranjeno v:
Bibliografske podrobnosti
izdano v:Front Public Health
Main Authors: Crowe, Ashleen L., McKnight, Amy Jayne, McAneney, Helen
Format: Artigo
Jezik:Inglês
Izdano: Frontiers Media S.A. 2019
Teme:
Online dostop:https://ncbi.nlm.nih.gov/pmc/articles/PMC6712370/
https://ncbi.nlm.nih.gov/pubmed/31497589
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.3389/fpubh.2019.00236
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