Mild-severe hemophilia B impacts relationships of US adults and children with hemophilia B and their families: results from the B-HERO-S study

BACKGROUND: The B-HERO-S study evaluated the impact of mild to severe hemophilia B on the lives of affected adults and children. Here, we assessed the impact of hemophilia B on relationships. METHODS: US adults with hemophilia B and caregivers of affected children completed separate online surveys t...

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發表在:Patient Relat Outcome Meas
Main Authors: Cutter, Susan, Guelcher, Christine, Hunter, Susan, Rotellini, Dawn, Dunn, Spencer, Cooper, David L
格式: Artigo
語言:Inglês
出版: Dove 2019
主題:
Original Research
在線閱讀:https://ncbi.nlm.nih.gov/pmc/articles/PMC6701620/
https://ncbi.nlm.nih.gov/pubmed/31496854
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.2147/PROM.S214188
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