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Quality of life of children with achondroplasia and their parents - a German cross-sectional study

BACKGROUND: Achondroplasia is the most common form of disproportionate short stature and might affect not only the quality of life of the affected child but also that of the parents. OBJECTIVES: We aimed to investigate the quality of life of children with achondroplasia from child- and parent perspe...

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Dades bibliogràfiques
Publicat a:Orphanet J Rare Dis
Autors principals: Witt, Stefanie, Kolb, Beate, Bloemeke, Janika, Mohnike, Klaus, Bullinger, Monika, Quitmann, Julia
Format: Artigo
Idioma:Inglês
Publicat: BioMed Central 2019
Matèries:
Accés en línia:https://ncbi.nlm.nih.gov/pmc/articles/PMC6688231/
https://ncbi.nlm.nih.gov/pubmed/31399110
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s13023-019-1171-9
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