Motivations and Decision-Making Processes of Men with X-linked Retinoschisis Considering Participation in an Ocular Gene Therapy Trial

PURPOSE: To describe the motivations, expectations, and other factors men with X-linked retinoschisis (XLRS) consider when making decisions to participate in an early-phase ocular gene therapy clinical trial. DESIGN: Qualitative interview study METHODS: Men with XLRS who were considering participati...

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Udgivet i:Am J Ophthalmol
Main Authors: Turriff, Amy, Blain, Delphine, Similuk, Morgan, Biesecker, Barbara, Wiley, Henry, Cukras, Catherine, Sieving, Paul A.
Format: Artigo
Sprog:Inglês
Udgivet: 2019
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Article
Online adgang:https://ncbi.nlm.nih.gov/pmc/articles/PMC6642689/
https://ncbi.nlm.nih.gov/pubmed/30885710
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1016/j.ajo.2019.03.009
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