Developing comparative effectiveness studies for a rare, understudied pediatric disease: lessons learned from the CARRA juvenile localized scleroderma consensus treatment plan pilot study

BACKGROUND: We designed and initiated a pilot comparative effectiveness study for juvenile localized scleroderma (jLS), for which there is limited evidence on best therapy. We evaluated the process we used, in relation to the specific protocol and to the general task of identifying strategies for im...

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Detalhes bibliográficos
Publicado no:Pediatr Rheumatol Online J
Main Authors: Li, Suzanne C., Fuhlbrigge, Robert C., Laxer, Ronald M., Pope, Elena, Ibarra, Maria F., Stewart, Katie, Mason, Thomas, Becker, Mara L., Hong, Sandy, Dedeoglu, Fatma, Torok, Kathryn S., Rabinovich, C. Egla, Ferguson, Polly J., Punaro, Marilynn, Feldman, Brian M., Andrews, Tracy, Higgins, Gloria C.
Formato: Artigo
Idioma:Inglês
Publicado em: BioMed Central 2019
Assuntos:
Research Article
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC6632199/
https://ncbi.nlm.nih.gov/pubmed/31307476
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s12969-019-0350-5
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