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The experience of parents of children with rare diseases when communicating with healthcare professionals: towards an integrative theory of trust

BACKGROUND: Given the inherent complexity of rare paediatric diseases and the sensitive emotional context of the situations they create (due to the patients’ age and the tense uncertainty surrounding the progression of the disease), communication between the adults involved is a key tool in the effo...

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Dades bibliogràfiques
Publicat a:Orphanet J Rare Dis
Autors principals: Gómez-Zúñiga, Beni, Pulido Moyano, Rafael, Pousada Fernández, Modesta, García Oliva, Alicia, Armayones Ruiz, Manuel
Format: Artigo
Idioma:Inglês
Publicat: BioMed Central 2019
Matèries:
Accés en línia:https://ncbi.nlm.nih.gov/pmc/articles/PMC6599337/
https://ncbi.nlm.nih.gov/pubmed/31253163
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s13023-019-1134-1
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