Design and development of a disease-specific quality of life tool for patients with aplastic anaemia and/or paroxysmal nocturnal haemoglobinuria (QLQ-AA/PNH)—a report on phase III

To date, instruments to measure quality of life (QoL) specifically for patients with acquired aplastic anaemia (AA) and paroxysmal nocturnal haemoglobinuria (PNH) are lacking altogether. As a consequence, this issue is either underevaluated or alternatively, instruments originally designed for cance...

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Библиографические подробности
Опубликовано в: :Ann Hematol
Главные авторы: Niedeggen, Cathrin, Singer, Susanne, Groth, Martha, Petermann-Meyer, Andrea, Röth, Alexander, Schrezenmeier, Hubert, Höchsmann, Britta, Brümmendorf, Tim H., Panse, Jens
Формат: Artigo
Язык:Inglês
Опубликовано: Springer Berlin Heidelberg 2019
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Original Article
Online-ссылка:https://ncbi.nlm.nih.gov/pmc/articles/PMC6591198/
https://ncbi.nlm.nih.gov/pubmed/31115593
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1007/s00277-019-03681-3
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