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Examining the Needs of Patient Stakeholders as Research Partners in Health Data Networks for Translational Research

Patient stakeholders are getting increasingly involved in research health data networks, particularly as research partners. However, tools do not exist to help effectively orient, educate, and engage patient stakeholders as they take on these roles. Using a human centered design approach, we conduct...

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Bibliografiska uppgifter
I publikationen:AMIA Jt Summits Transl Sci Proc
Huvudupphovsmän: Stephens, Kari A., Osterhage, Katie P., Fiore-Gartland, Brittany, Lovins, Terri L., Keppel, Gina A., Kim, Katherine K.
Materialtyp: Artigo
Språk:Inglês
Publicerad: American Medical Informatics Association 2019
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Länkar:https://ncbi.nlm.nih.gov/pmc/articles/PMC6568099/
https://ncbi.nlm.nih.gov/pubmed/31258989
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