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Under-utilisation of reproducible, child appropriate or patient reported outcome measures in childhood uveitis interventional research

BACKGROUND: Childhood uveitis is a collection of chronic rare inflammatory eye disorders which result in visual loss in at least one eye of one fifth of affected children. Despite the introduction of novel systemic immunochemotherapies, it remains a blinding disease. We have undertaken a systematic...

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Detalhes bibliográficos
Publicado no:Orphanet J Rare Dis
Main Authors: Solebo, Ameenat L., Barry, Robert J., Keane, Pearse A., Rahi, Jugnoo S., Denniston, Alastair K.
Formato: Artigo
Idioma:Inglês
Publicado em: BioMed Central 2019
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Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC6555041/
https://ncbi.nlm.nih.gov/pubmed/31171027
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s13023-019-1108-3
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