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Ethical and Policy Considerations for Genomic Testing in Pediatric Research: The Path Toward Disclosing Individual Research Results

DNA is now commonly collected in clinical research either for immediate genomic analyses or stored for future studies. Many genomic studies were previously designed without awareness of the ethical issues that might arise regarding the disclosure of genomic test results. At the start of the Chronic...

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Bibliographische Detailangaben
Veröffentlicht in:Am J Kidney Dis
Hauptverfasser: Wong, Craig S., Kogon, Amy J., Warady, Bradley A., Furth, Susan L., Lantos, John D., Wilfond, Benjamin S.
Format: Artigo
Sprache:Inglês
Veröffentlicht: 2019
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Online Zugang:https://ncbi.nlm.nih.gov/pmc/articles/PMC6548468/
https://ncbi.nlm.nih.gov/pubmed/30879919
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1053/j.ajkd.2019.01.020
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