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Sociodemographic, Clinical, and Psychosocial Characteristics of People with Hemophilia in Portugal: Findings from the First National Survey
Hemophilia is a rare genetic bleeding disorder associated with pain, impaired functionality, and decreased quality of life (QoL). Several studies have focused on patient-reported outcomes of people with hemophilia (PWH) worldwide, but no such data are available for Portugal. This survey aimed to des...
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| Опубликовано в: : | TH Open |
|---|---|
| Главные авторы: | , , , , , , , , |
| Формат: | Artigo |
| Язык: | Inglês |
| Опубликовано: |
Georg Thieme Verlag KG
2018
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| Online-ссылка: | https://ncbi.nlm.nih.gov/pmc/articles/PMC6524863/ https://ncbi.nlm.nih.gov/pubmed/31249930 https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1055/s-0038-1624568 |
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