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International collaborative actions and transparency to understand, diagnose, and develop therapies for rare diseases
Rare diseases, which affect over 350 million people worldwide and frequently go undiagnosed or misdiagnosed for years, suffer from sparse and dispersed medical knowledge leading to even rarer approved and effective therapeutic options for patients. A vast, unmet need for research and investment to a...
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| Publié dans: | EMBO Mol Med |
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| Auteurs principaux: | , , , |
| Format: | Artigo |
| Langue: | Inglês |
| Publié: |
John Wiley and Sons Inc.
2019
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| Sujets: | |
| Accès en ligne: | https://ncbi.nlm.nih.gov/pmc/articles/PMC6505568/ https://ncbi.nlm.nih.gov/pubmed/30979709 https://ncbi.nlm.nih.govhttp://dx.doi.org/10.15252/emmm.201910486 |
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